PANIZZUT ed altri: "Norme per la cura delle malattie rare e per il sostegno della ricerca su di esse" (2272)

This procedure concerns the establishment of rules for the care of individuals with rare diseases and the promotion of research into these conditions. It aims to improve the lives of patients and advance medical understanding. The measures will affect patients with rare diseases, healthcare providers, and research institutions. It seeks to ensure better access to treatment and foster innovation in the field.