LUCCHESE: "Legge quadro sulla prevenzione e la cura della talassemia, della drepanocitosi e delle emoglobinopatie genetiche" (591)

This legislative proposal aims to establish a comprehensive framework for the prevention and treatment of thalassemia, sickle cell disease, and other genetic hemoglobinopathies. It focuses on improving healthcare standards and ensuring coordinated care for patients with these hereditary blood disorders. The law primarily affects patients with genetic blood disorders and the healthcare providers responsible for their diagnosis and long-term treatment in Italy.