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LUCCHESE ed altri: "Legge quadro sulla prevenzione e la cura della thalassemia, della drepanocitosi e delle emoglobinopatie genetiche" (646)

Stage otherUpdated 5mo ago

This legislative proposal aims to establish a comprehensive framework for the prevention and treatment of thalassemia, sickle cell disease, and other genetic hemoglobinopathies. It seeks to standardize care and improve the quality of life for patients suffering from these hereditary blood disorders. The procedure primarily affects patients with genetic blood disorders and the healthcare providers responsible for their diagnosis and long-term treatment.