DEIANA e VALPIANA: "Norme per assicurare l'accesso alla terapia delle malattie rare e per garantire il diritto ai farmaci rari e di emergenza" (4105)

This legislative proposal aims to ensure that patients with rare diseases have guaranteed access to necessary therapies. It focuses on establishing clear rules to secure the right to rare and emergency medications, preventing delays in treatment for life-threatening or chronic rare conditions. This will primarily affect patients with rare diseases, healthcare providers, and pharmaceutical companies. It seeks to streamline the availability of specialized drugs within the Italian healthcare system.