personnes handicapées – Aidants d'enfants atteints de maladies rares : AJPP et droits MDPH

This written question concerns support for parents caring for children with rare diseases, specifically focusing on the AJPP (Allocation Journalière de Proche Aidant) and rights related to disability support (MDPH). It seeks clarification on existing provisions and potential improvements. The question affects families with children suffering from rare diseases, potentially impacting their access to financial aid, care services, and other forms of support.