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← 🇫🇷 Assemblée nationale/RÉSOLUTION ARTICLE 34-1an-dossier-647288

Mettre en œuvre un nouveau plan pour les maladies rares

Stage submittedUpdated 4mo ago

This procedure is a resolution aimed at implementing a new national strategy to improve the care and support for people living with rare diseases. It focuses on enhancing diagnosis, treatment access, and the overall quality of life for patients facing these often neglected conditions. The plan primarily affects patients with rare diseases, healthcare providers, and medical researchers. It seeks to streamline patient pathways and increase funding for specialized medical research.