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← 🇫🇷 Assemblée nationale/QUESTION_ECRITEan-question-QANR5L16QE13105

maladies – Syndrome d'Esthers-Danlos

Stage submittedUpdated 5mo ago

This written question concerns Ehlers-Danlos Syndrome (EDS), a group of inherited connective tissue disorders. It seeks information on the recognition and management of this condition within the healthcare system. The question highlights the impact of EDS on affected individuals and aims to understand what measures are being considered to improve diagnosis, treatment, and support services for patients.