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ALLIANCE MALADIES RARES — National Lobby Register | GovLens

← National Lobby Register

AM

Association

ALLIANCE MALADIES RARES

FRHATVP RépertoireRegistered 31/03/2026

Lobby budget

Not disclosed

Staff / FTE

—

EC Meetings

—

Revolving door

—

Fields of Interest

Coopération internationaleEmploi, solidaritéEnseignement supérieur, recherche, innovationSanté

Lobbying Targets

• National

Representatives

Jean-Philippe PLANÇONPrésident

Aly BANGOURACollaborateur

Jean-Philippe PLANÇONPrésident

Paul GIMENESDirecteur Général

Details

Country: FR
Register: HATVP Répertoire

Type

Association

Category

ORG_NO_GOUV

Registration

31/03/2026

Last updated

31/03/2026

Address

75014, PARIS, FRANCE

alliance-maladies-rares.org &nearr;

Data sourced from HATVP Répertoire. Updated 01/05/2026.