ZVEZA EUROPSO
Budget
€100 — €0
EP Access
0
accredited persons
Staff
8
7.5 FTE
EU Grants
None
Mission & Goals
EUROPSO is a patient umbrella organisation with an overall goal to achieve better conditions for early diagnostics, access to treatment and improving the quality of life for all patients suffering from psoriasis in Europe. In order to achieve this goal, EUROPSO organises activities to educate and raise awareness of this condition, helping social and economic integration of psoriasis/psoriasis arthritis patients and dispelling prejudices and all other forms of discrimination against psoriasis/psoriasis arthritis patients. EUROPSO works with other organisations which share the same or similar goal. In order to reach a wider group of decision makers on the EU level, one of EUROPSO’s aims is obtaining recognition from the European Union and other European international institutions.
EU Legislative Interests
We operate in the health sector for the better recognition of psoriasis and arthritis psoriasis within the existing health policies. EUROPSO activities are aimed at protecting the rights of patients, to ensure equal access to treatment and the right therapeutic path. EUROPSO would like to represent the psoriasis patient voice within the “EU4Health Programme” (the Regulation (EU) 2021/522 of the European Parliament and of the Council of 24 March 2021 establishing a Programme for the Union’s action in the field of health (‘EU4Health Programme’) for the period 2021-2027, and repealing Regulation (EU) No 282/2014 (Text with EEA relevance)).
Communication Activities
In the framework of the PSOdata Project, EUROPSO is gathering valuable evidence on the knowledge, attitudes, preferences and lived experiences of psoriasis patients across Europe, including aspects related to biological medicines, generics, biosimilars, treatment access and the cost of living with psoriasis. Preliminary insights already show inequities in access to innovative therapies and persistent gaps in patient information, which directly affect the ability of patients to make informed decisions and to contribute meaningfully to policy and clinical research discussions. To address these issues and bring the patient perspective to the European level, EUROPSO intends to initiate an open dialogue with representatives from different political groups and Member States of the EU Parliament. The activities foreseen for 2026 to foster such conversations with MEPs and other decision-makers include: Organising or participating in meetings, conferences or events dedicated to psoriasis, patient data, and equitable access to therapies. Engaging in consultations and hearings on patient involvement, HTA processes, access to innovative medicines, and other policies aligned with EUROPSO’s Constitution and the PSOdata Project objectives. Launching communication campaigns, digital platforms and networks to disseminate the findings of the PSOdata Project, raising awareness of psoriasis, psoriatic arthritis, and the socioeconomic challenges faced by patients and their families across Europe. Preparing or commissioning policy briefs, position papers, amendments, surveys and analytical reports derived from PSOdata evidence, supporting EU-level decision making. EUROPSO will seek the patronage and support of Members of the European Parliament in order to convene high-level meetings and policy debates, specifically on the equity of access to psoriasis therapies and patient-informed evidence. As part of these activities, educational and preparatory materials will be developed for all participants, ensuring that MEPs, policymakers, and patient representatives have the necessary background to engage in meaningful, evidence-based discussions
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
https://psoriasis-hilfe.at/organisation/ https://www.gipso.info/ https://www.psoriasis-vl.be/dru http://drustvo-psorijaticara.hr/ https://spae.cz/ https://psoriasis.dk/ http://www.epsol.ee/ https://psori.fi/ https://francepsoriasis.org/ https://www.psoriasis-bund.de/ http://epidermia.gr/ https://www.apiafco.org/en/home-2/ https://psoriasispatientennederland.nl/ http://www.hudportalen.no/ https://psoportugal.pt/ https://psorijaza.rs/ https://spaa-sr.webnode.sk/o-nas/ https://drustvo-psoriatikov.si/ https://www.accionpsoriasis.org/ https://www.spvg.ch/de/
Organisation Members
https://ifpa-pso.com/ https://www.eu-patient.eu/
Additional Information
EUROPSO will be continually fundraising for these activities.
Commissioner Meetings
No recorded meetings with EU commissioners.