Youth Cancer Europe

EU Legislative Interests

Areas of EU Health and Research currently followed by Youth Cancer Europe are: Cancer; Rare diseases, Heath systems and services, Personalised medicine, Environment and Health, Public Health, Global Partnership Youth Cancer Europe also follows the following EU initiatives and actions: Horizon 2020, Innovative Medicines Initiative, Patients’ rights in Cross-border healthcare, European Reference Networks, eHealth, Health Technology Assessment, Health systems performance assessment as well as initiatives in the areas of Promoting good health, Nutrition and physical activity and Mental health and the legislative area of Pharmaceuticals and medical devices.

Communication Activities

Relevant projects: Youth Cancer Europe Open Space Summit 2014, Bucharest Youth Cancer Europe Advocacy Masterclass 2015, Cluj-Napoca Youth Cancer Europe @ Untold Music Festival manifestation 2015 Youth Cancer Europe Patient Summit 2017, Vilnius YCE Structured Training on the Fundamentals of EU Policymaking, 2018 Brussels European Parliament policy event on financial discrimination of long term cancer survivors, October 2018, Brussels Youth Cancer Europe Leadership Summit, July 2019, Budapest European Parliament policy event on cross border health, November 2019, Brussels European Beating Cancer Plan public consultation launch, Key note speech in European Parliament Hemicycle, February 2020 European Parliament BECA hearing, January 2021 (Fertility / Mental Health) European Parliament BECA hearing, April 2021 (Cross Border Health) EPP hearing (The Right to Be Forgotten), May 2021 Cancer & Fertility: a YCE advocacy project, 2021 - 2022 Cancer in time of war: Ukraine war crisis response operations, 2022 2023 Peer Visits as research method for Youth with lived experience 2023 Youth Cancer Europe participates in EU’s Cancer Mission Consultations 2023 YCE’s Nicola Unterecker speaks at the European Commission’s World Mental Health Day Conference 2023 Youth Cancer Europe hosted the From Prejudice to Progress: Discrimination, Equity, Diversity & Inclusion Round Table and Workshops event 2023 YCE conducts 5 hospital Peer Visits in Europe 2023 YCE in a Policy Dialogue on mental health with EU Health Commissioner 2023 YCE speaks at the Swedish Presidency EU event for World Cancer Day 2024 Unveiling the “Recommendation and Implementation Roadmap for Minimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units” Position Paper 2024 Youth Cancer Europe’s Webinar on Equity, Diversity, and Inclusion in Cancer Care 2024 Recommendations for Equitable, Diverse, and Inclusive Cancer Care launched at the European Parliament Relevant PR & Communication Activities as well as publications: Open Space Summit Key Outcomes Report 2014 December The Role of Youth in Cancer Policy, YouTube videos since 2016 Young cancer patients advocate for improved care September 5, 2017 article in The BMJ Youth Cancer Europe: White Paper, October 2018 Chemo Brain: Cancer & Mental Health Webinar, January 2021 Cannabis & Cancer: Let's Clear the Smoke! Webinar, April 2021 2023 YCE speaks at the Swedish Presidency EU event for World Cancer Day 2024 Unveiling the “Recommendation and Implementation Roadmap for Minimum Standards of Specialist Adolescent and Young Adult (AYA) Cancer Care Units” Position Paper 2024 Youth Cancer Europe’s Webinar on Equity, Diversity, and Inclusion in Cancer Care 2024 Recommendations for Equitable, Diverse, and Inclusive Cancer Care launched at the European Parliament

Interests Represented

Does not represent commercial interests

Member Of

YCE is not a member of any umbrella organisations YCE is collaborating in the following networks: - https://www.europeancancer.org (several focused topic networks) - https://www.euhealthcoalition.eu

Organisation Members

www.youthcancereurope.org/network/