World Marrow Donor Association
Budget
€10 — €0
EP Access
0
accredited persons
Staff
1
0.1 FTE
EU Grants
None
Mission & Goals
Our Vision A world where access to life-saving cellular therapies for all patients is assured and donors’ rights and safety are protected. Our Mission We work with our members to ensure reliable provision of life-saving cells while promoting care and safety for both patient and donor. Our Aims • Optimising ‘Search, Match & Connect’: A global ‘Search, Match & Connect’ environment that facilitates the most suitable cell source for patients. • Supporting global development: supporting members to develop and grow, so that more patients find the most suitable cell source. • Promoting donor care: ensuring the rights and safety of cell donors are promoted and protected;. • Ensuring quality: promoting quality and global collaboration through standardisation. * Driving member engagement: Safeguard and elevate the voice of our members
EU Legislative Interests
Development of EU Regulation in the field of tissues and cells (SoHo). Acceptance of the WMDA certification programme as tool to import cells to EU Member States Maintenance and ongoing development of a global application to report Serious (Product) Events and Adverse Reactions – S(P)EARs – after cell donation. Promote use of this application not only for therapies with cells from unrelated donors, but also for therapies with cells from related donors.
Communication Activities
Organisation of World Marrow Donor Day; an annual event to create global awareness for stem cell donation and to thank voluntary stem cell donors. Website address: https://worldmarrowdonorday.org Relevant publications in scientific journals: 1. Donor Center Audits: Bone Marrow Transplantation (2022) 57:466–472; https://doi.org/10.1038/s41409-022-01563-3. 2.Serious Stem Cell Donation Events and Recipient Adverse Reactions Related to Severe Acute Respiratory Syndrome Coronavirus 2: Review of Reports to the World Marrow Donor Association (https://doi.org/10.1016/j.jtct.2023.05.020) 3.World Marrow Donor Association guidelines for the reporting of novel HLA alleles (https://onlinelibrary.wiley.com/doi/10.1111/tan.15048) 4. Impact of COVID-19 pandemic on global unrelated stem cell donations in 2020-Report from World Marrow Donor Association (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8994088/) 5. Remuneration of donors for cell and gene therapies: an update on the principles and perspective of the World Marrow Donor Association (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11073962/) 6.Serious Stem Cell Donation Events and Recipient Adverse Reactions Related to Severe Acute Respiratory Syndrome Coronavirus 2: Review of Reports to the World Marrow Donor Association (https://www.sciencedirect.com/science/article/pii/S2666636723013209?via%3Dihub) Annual publications, available on our website: https://wmda.info (footer of the home page)
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
Worldwide Network for Blood and Marrow Transpantation: https://www.wbmt.org/ AABB: http://www.aabb.org/Pages/default.aspx CBA: Cord Blood Association EBMT: https://www.ebmt.org
Organisation Members
https://share.wmda.info/display/WMDAREG/Database
Commissioner Meetings
No recorded meetings with EU commissioners.