Recent meetings
| Date | Commissioner / Cabinet | Topic | File |
|---|---|---|---|
| 16 Apr 2026 | Olivér Várhelyi Commissioner | Biotechnology | — |
| 16 Apr 2026 | Olivér Várhelyi Commissioner | Biotechnology | SRC |
| 23 Sept 2025 | Maya Matthews Head of Unit | Understanding the identification of clinical experts to participate in joint scientific consultations and joint clinical assessments under the EU Regulation on health technology assessment | — |
| 23 Sept 2025 | Maya Matthews Head of Unit | Understanding the identification of clinical experts to participate in joint scientific consultations and joint clinical assessments under the EU Regulation on health technology assessment | SRC |
| 17 Jun 2025 | Laszlo Andrejko Cabinet member | Rare diseases | — |
| 17 Jun 2025 | Laszlo Andrejko Cabinet member | Rare diseases | SRC |
Mission & Goals
The Company's remit is to manufacture, trade, and distribute Ultragenyx products and services. Ultragenyx was founded to advance innovative medicines for rare and ultrarare diseases that have never been treated before. We are delivering transformative therapies across multiple indications, and we have one of the most robust and diverse clinical pipelines in rare disease. Our focus is on doing the right things for patients both during development and commercialization to deliver on the promise of these therapies in a way that's meaningful for rare disease communities.
EU Legislative Interests
Rare Diseases, Life Science and competitiveness
Communication Activities
media communications and events
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
EUCOPE European Confederation Pharmaceutical Entrepreneurs EURORDIS Rare Diseases Europe Association Regenerative Medicine US Chamber of Commerce