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OtherSobi

Swedish Orphan Biovitrum

Stockholm, SWEDENABReg: 232923831740-31Since 07/06/2018

Budget

€200 — €0

EP Access

1

accredited persons

Staff

2

1.25 FTE

EU Grants

None

Mission & Goals

Sobi is a global biopharmaceutical company specialized in rare diseases developing and providing access to innovative treatments in the areas of haematology, immunology and specialty care. Sobi offers an integrated process, from in-house research and development in protein characterisation, biologics manufacturing and industrialisation, to commercialisation of products for rare diseases. Partnering with stakeholders and facilitating effective and timely rare-disease therapy development, including an extensive and robust distribution network, creates unique opportunities for us to add value to the rare-disease field.

EU Legislative Interests

Rare disease policies (OMP & Paediatric regulation) General Pharmaceutical Legislation Pharmaceutical IP EU HTA Security of supply EU Biotech Act

Communication Activities

- European Commission Regulation on health technology assessment and amending Directive 2011/24/EU - European Commission study on the evaluation of the EU Orphan & Paediatric legislation - European Commission Pharmaceutical Strategy - European Parliament/EU Commission EU4Health Programme (particularly for rare diseases, ERNs)

Interests Represented

Promotes their own interests or the collective interests of their members

Member Of

Sobi is member of EUCOPE https://www.eucope.org/members/

Organisation Members

https://www.sobi.com/en/trade-association-memberships

Commissioner Meetings

No recorded meetings with EU commissioners.

Swedish Orphan Biovitrum — EU Lobby Register | GovLens