Recent meetings
No recorded meetings with EU commissioners.
Mission & Goals
Stichting (On)beperkt Vooruit! (ENG: (Un)limited Forward! Foundation) is a patient advocacy organisation that bridges the gap between healthcare, policy, research and lived experience. Its mission is to improve quality of life and care for people living with multimorbidity (MLTC) and rare diseases by providing personal nursing care and equine-assisted coaching and ensuring that healthcare, policy and research reflect real-life needs. The foundation supports and represents children and young people facing complex health and social challenges and contributes to research and policy by integrating patient expertise into evaluation and decision-making. It operates nationally, at EU level through collaboration with European patient alliances such as EURORDIS, where representatives trained through EUCAPA and EUPATI act as HTA Ambassadors, and globally through research consortia and networks such as IRDiRC and GNNRD.
EU Legislative Interests
Regulation (EU) 2021/2282 on Health Technology Assessment. Horizon Europe Framework Programme – Cluster 1 “Health” (2021–2027). EU4Health Programme (2021–2027). European Disability Strategy 2021–2030. European Care Strategy (2022). Council Recommendation on a European approach to rare diseases (in preparation).
Communication Activities
SOV engages with the European Commission mainly through participation in policy dialogues, research projects and stakeholder workshops under Horizon Europe and EU4Health. The foundation contributes patient perspectives on multimorbidity, rare diseases and inclusive care to consultations and expert meetings. It also interacts with European initiatives such as EURORDIS, EUPATI and ERN-related networks and exchanges knowledge globally through IRDiRC and GNNRD. These activities aim to align healthcare and research with lived experience. SOV conducts no lobbying or commercial advocacy.
Interests Represented
Does not represent commercial interests
Member Of
Stichting (On)beperkt Vooruit! is involved in several national, European and global networks including the International Rare Diseases Research Consortium (IRDiRC), the Global Network for Rare Diseases (GNNRD), EURORDIS and Patiëntenfederatie Nederland. The foundation and its representatives are EUPATI and EUCAPA trained patient experts and HTA Ambassadors. It collaborates with the University Medical Center Groningen (UMCG) on research into multimorbidity and care coordination and has provided scientific and patient-centred advice to the Dutch Medicines Evaluation Board (CBG). Previous collaborations included the Endo-ERN and ERICA networks.
Organisation Members
Stichting (On)beperkt Vooruit! does not have formal members. It operates as a non-profit foundation with an active board, volunteers and partner organisations. More information about its activities and collaborations is available at: https://onbeperktvooruit.nl/information/