Pulmonary Hypertension Association Europe - Europäische Arbeitsgruppe für Lungenhochdruck (PHA Europe)
Budget
€50 — €0
EP Access
0
accredited persons
Staff
1
0.25 FTE
EU Grants
None
Mission & Goals
The aims of PHA Europe are summarized in its position paper, “Call to Action” which identifies the main unmet needs of persons living with pulmonary hypertension and recommends effective ways to address those needs. The main areas for action are the followings: improve access to expert care improve awareness and screening encourage clinical research and innovation empower patient groups ensure the availability of psychosocial support
EU Legislative Interests
EU Health Programme EU's Data Strategy and AI Directive 2011/24/EU of the European Parliament and of the Council of 9 March 2011 on the application of patients’ rights in cross-border healthcare
Communication Activities
We are planning to organize&participate in various events where MEPs, representatives from DG Sante/Research will be present.
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
https://www.phaeurope.org/get-involved/advocacy-policy-work/partnerships/
Organisation Members
https://www.phaeurope.org/about-pha-europe/members-of-pha-europe-and-contact-details/
Commissioner Meetings
No recorded meetings with EU commissioners.