Pain Alliance Europe
Budget
€46,836
EP Access
0
accredited persons
Staff
7
3.5 FTE
EU Grants
None
Mission & Goals
For PAE, quality of life for a chronic pain patient means giving the patient the right to choose the best possible solutions and support to live their life according to their possibilities and wishes. PAE aims to promote awareness of chronic pain, to contribute to creating a European policy on chronic pain and to reduce the impact of chronic pain on the European society on all areas. In order to reach our goals, PAE initiates and develops the following actions: Working in close relation with the other stakeholders Gather and distribute relative information on chronic pain from the patients' point of view. Establish a good relationship with potential sponsors Promote and or initiate research on chronic pain Growing the association Obtaining visibility through events, website, media coverage
EU Legislative Interests
Through our partnership with the European Pain Federation (EFIC) in the Societal Impact of Pain Platform (SIP) ( See details below) We responded to the Comprehensive Approach to Mental Health, and continue to work within the areas of the EU Health Data Space Plan, Healthy Workplaces, and the Beating Cancer Plan and developed position papers from the pain perspective. Public Consultations on Health issues In 2023, PAE was part of the preEU elections discussions promoting the chronic pain agenda with several MEPs and creating with SIP the SIP BoE, launched in 2024, and officially presented in an event in the EU parliament.
Communication Activities
In partnership with the European Pain Federation (EFIC) in the Societal Impact of Pain Platform (SIP) we hold events which also launch our position papers in response to EU policy that involves the societal impact of pain including Comprehensive approach to Mental Health, EU Health Data Space Plan, Healthy Workplaces, the Beating Cancer Plan. On 16th October 2024, SIP hosted an event on: Pain Treatment, Management and Prevention – Is Europe Providing Adequate Access? in the Fondation Universitaire, Brussels. In this event, with the participation from all relevant stakeholders, an in-depth discussion on the accessibility of pain treatment, management, and prevention across Europe was held. It was a unique opportunity that provided a platform for policymakers, the scientific community and patients to convene, share insights, and collaborate on critical issues surrounding pain care.
Interests Represented
Does not represent commercial interests
Member Of
PAE is a member of the patient consultation with the European Medicines Agency EMA Works closely with the European Pain Federation EFIC We are members of many European Organisations including European Federation of Neurological Associations (EFNA), and Active Citizens Network (ACN) and PAREA.
Organisation Members
http://www.pae-eu.eu/members/
Additional Information
During the AGM of Nov. 2024 the results of the yearly accounts presented (regarding year 2023) were as follows: Loss of 17.047.51 and benefit of 4.641.96 The amounts of Income from the industry come from an agreement for the relaunch on the PainW.I.S.E. Grant. This Grant will have an additional Sponsor during 2025. The rest of our income comes from SIP for any SIP related activity. During the year we also had a smaller amount of income for an advisory, less than 10k that is not declared here.
Commissioner Meetings
No recorded meetings with EU commissioners.