Lymphoma Coalition
Budget
€10 — €0
EP Access
0
accredited persons
Staff
3
0.7 FTE
EU Grants
None
Mission & Goals
Lymphoma Coalition, a worldwide network of patient groups providing support to patients with lymphoma, was formed in 2002 and incorporated as a not for profit organisation in 2010. The need for a central hub of consistent and reliable current information was recognised as well as the need for lymphoma patient organisations to share resources, best practices and policies. 4 lymphoma organisations started the LC in 2002. Today, there are over 100 member organisations from over 55 countries. Lymphoma Coalition respectfully listens to those affected by lymphoma and uses what we learn to collaboratively guide global efforts that have local impact. Credible and principled, integrity is central to all we do. Vision: A better future for everyone impacted by lymphoma. Mission: Lymphoma Coalition is the leading global coalition of patient organisations. We work together to generate and provide trusted information, knowledge, and best practice to influence and make possible equitable care.
EU Legislative Interests
Bringing lymphoma and CLL into the Beating Cancer plan in a useable and actionable way. As blood cancers are not preventable, cannot be screened for, and are often treated uniquely, the current plan does not well reprepsent this group of cancers. We strive to ensure the specific needs of blood cancer patients are properly represented. In addition, LC is interested in the following (not limited to): Right to be Forgotten Clinical Trials Regulation Pharmaceutical Legislation IVD and SoHO regulations All health related activites Cancer Mission Joint Clinical Assessments - EU HTA Stakeholder Network
Communication Activities
Provided feedback to the Joint Clinical Assessment, Join Scientific Consultation, and EUnetHTA open consultations Provided feedback to the Pharmaceutical Legislation Members of the HTA Stakeholders Network Actively involved in the Code of Conduct access to financial services cancer patients
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
European Cancer Organisation through the Patient Advisory Committee https://www.europeancancer.org/patients European Hematology Association - European Affairs Committee https://ehaweb.org/organization/committees/european-affairs-committee/#:~:text=Aim,Office%20and%20other%20EHA%20Committees. Global Cancer Coalitions Network https://www.globalccn.org/ UICC https://www.uicc.org/membership/lymphoma-coalition WECAN https://wecanadvocate.eu/#participants
Organisation Members
Members of Lymphoma Coalition European Hematology Association - European Affairs Committee https://ehaweb.org/organization/committees/european-affairs-committee/#:~:text=Aim,Office%20and%20other%20EHA%20Committees. European Bone and Marrow Transplant Group Patient Advocacy Committee https://www.ebmt.org/patient-advocacy-committee ESMO Patient Advocates Working Group https://www.esmo.org/about-esmo/organisational-structure/european-policy-committee/patient-advocates-working-group
Commissioner Meetings
No recorded meetings with EU commissioners.