Irish Platform for Patient Organisations, Science & Industry
Recent meetings
No recorded meetings with EU commissioners.
Mission & Goals
The goal of our organisation is to ensure that the voice of individuals with chronic and/or rare conditions is heard across the health innovation sector. We work mainly around issues related to access to innovation, health data, and public and patient involvement. We focus on national legislation, policy and practice, but where European proposals impact on national action, we aim to represent the views of our members by making submissions and attending events.
EU Legislative Interests
We target EU legislative proposals or policies in the public health sphere. In 2024, we responded to public consultations around: - Joint Clinical Assessments for health technology In 2023, we responded to public consultations around: - Joint Clinical Assessments for health technology In 2022, we responded to public consultations around: - EUnetHTA - New regulation on health Technology Assessment On each occasion, we made written submission via the EU portal.
Communication Activities
Our written submissions to EU public consultations are shared on our website and on our social media channels.
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
European Patients' Forum - https://www.eu-patient.eu PFMD - https://patientfocusedmedicine.org/ EUPATI - https://eupati.eu/ Data Saves Lives - https://datasaveslives.eu/ Patient Engagement Open Forum - https://patientengagementopenforum.org/
Organisation Members
https://www.ipposi.ie/about-us/membership/