Irish Cancer Society

EU Legislative Interests

• EU legislation on Food Information to Consumers • Public Health Alcohol Act, 2018 • European Union Consumer Directive • VAT Directive • Strengthening prevention through early detection: A new approach on cancer screening replacing CR 2003/878/EC • EU rules on medicines for children and rare diseases • Europe’s Beating Cancer Plan • Pharmaceutical Strategy • EU Ambient Air Quality • EU Pharmaceutical Legislation • Tobacco Products Directive • Tobacco Taxation Directive • Consumer Credit Directive

Communication Activities

• March 2022: Survey on the 'Revision of EU legislation on Food Information to Consumers' • September 2022: Submission re notification 2022/441/IRL of Draft Regulations under Section 12 of the Public Health Alcohol Act, 2018 • Submission to the Open Public Consultation on the revision of EU rules on medicines for children and rare diseases - Medicines for children and rare diseases: Commission launches a public consultation | Public Health (europa.eu) • Submission as part of the Public consultation on the Commission’s Europe’s Beating Cancer Plan (Online Questionnaire) • Survey on the Pharmaceutical Strategy - Timely patient access to affordable medicines Pharmaceuticals – safe and affordable medicines (new EU strategy) (europa.eu) • Submission as part of the consultation regarding EU Ambient Air Quality Air quality - revision of EU rules (europa.eu) • Submission as part of the consultation regarding EU Pharmaceutical Legislation - Revision of the EU general pharmaceuticals legislation (europa.eu) • The Irish Cancer Society hosted a webinar on accessing financial products for young cancer survivors with Frances Fitzgerald MEP (22nd September 2022) • Email to Frances Fitzgerald (MEP) further to the webinar (12th October 2022) • Email correspondence with Frances Fitzgerald’s office (MEP) regarding changes to Annex III of the VAT Directive (February 2022) • Email correspondence with Frances Fitzgerald (MEP) and Deirdre Clune (MEP) with the Irish Cancer Society report on access to financial services and products (18th February 2022) • Discussion with Deirdre Clune (MEP) at the Fine Gael Ard Fheis on the 'Right to be Forgotten' (19th November 2022) • Email showing support for the European Respiratory Society representations on the efficacy of lunch cancer screening (23rd November 2022) • Submission to Study on mapping and evaluating the implementation of the Europe’s Beating Cancer Plan – CSO, September 2023 • Submission to ‘Cancer prevention - reducing the health risks associated with using sunbeds’, November 2023 • Meeting with MEP Barry Andrews, April 2024 • Email sent to MEP candidates ahead of election with manifesto asks, June 2024 • Engaged with newly elected Irish MEP's post election on interest in membership of the MEPs Against Cancer Group, October 2024 • Attendance at a meeting of the MEPs Against Cancer Group, 22.05.25 • Meeting with MEPs Seán Kelly and Maria Walsh on Access to Financial Products and Services after cancer, 22.05.25 • Attendance and participation at the European Alliance for Personalised Medicine Policy Seminar, “Every Second Counts: Modernizing Cancer Screening to Save Lives”, 15.07.25 • Email to MEP Billy Kelleher's office regarding the Tobacco Taxation Directive, 25.09.25 • Feedback submitted to the Tobacco Taxation Directive, October 2025

Interests Represented

Does not represent commercial interests

Member Of

As listed here (https://www.cancer.ie/about-us/about-the-irish-cancer-society/who-we-are/memberships), the Irish Cancer Society are members of the following: • The Helplines Association (THA) • Union for International Cancer Control (UICC) • Association of European Cancer Leagues (ECL) • Medical Research Charities Group (MRCG) • Care Alliance Ireland • The Wheel • European Forum for Good Clinical Practice (EFGCP) • Irish Management Institute • Institute of Directors in Ireland • The Institute of Certified Public Accountants in Ireland (CPA) • Irish Charities Tax Reform Group (The Atlantic Philantropies) • The Irish Community Forum • Charities Institute Ireland

Organisation Members

ARC -all sites -Dublin Balbriggan Cancer Support Cancer Support Sanctuary LARCC - Mullingar (Nat'l) CARE Cancer Support - Clonmel Circle of Friends - Tipperary Cork ARC Cuan Cancer Support Group - Cootehill, Cavan Cúisle Centre - Portlaoise + Naas Dochas Offaly - Tullamore Donegal Cancer Flights and Services Eist Carlow Cancer Support Gary Kelly Cancer Support - Drogheda Greystones Cancer Support HOPE Enniscorthy Irish House Cork Cancer Support Mayo Cancer Support Association MWCF Midwestern Cancer Foundation Recovery Haven - Tralee Roscommon Cancer Support Group Sligo Cancer Support Centre + Tubbercurry + Donegal Solas Cancer Support Centre Suaimhneas - Nenagh Suir Haven - Thurles Tuam Cancer Care

Additional Information

Please refer to the Irish Cancer Society's Annual Report 2024 (https://www.cancer.ie/about-our-work/irish-cancer-society-annual-reports) for more information.