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IK
NGOIKCC

International Kidney Cancer Coalition

Utrecht, NETHERLANDSNGO networkReg: 968824245466-78Since 16/02/2022

Budget

€381,797

EP Access

0

accredited persons

Staff

9

2.75 FTE

EU Grants

€19,858

Mission & Goals

International Kidney Cancer Coalition (IKCC) is the only global patient-driven organisation dedicated exclusively to kidney cancer. IKCC brings together Partner Organisations from around the world to collaborate, share expertise, and learn from one another, united by a common goal: reducing the global burden of kidney cancer. Through this collective effort, IKCC is driving meaningful global impact across research, treatment, care, and survivorship. IKCC is committed to achieving our vision through these strategic pathways, with a focus on key flagship programs. Empowerment: Empowering patient organisations to reduce disease burden locally. Research & Information: Quality assured and credible to drive patient outcomes. Awareness: For kidney cancer and the ways to reduce the burden on patients. Advocacy: Improving access to treatment and care for all people with kidney cancer. Global Patient Voice: Bring patient perspectives to policy-making, healthcare and industry.

EU Legislative Interests

European Beating Cancer Plan, Horizon Europe, Cancer Mission Research and innovation, patient as partner, public health

Communication Activities

World Kidney Cancer Day: worldkidneycancerday.org, Global RCC Patient Survey: https://ikcc.org/publications/ Facebook: ikcc Instagram: @ikccfoundation X: @IKCCorg Youtube: @ikccorg LinkedIn: International Kidney Cancer Coalition (IKCC) BlueSky: @ikccorg.bsky.social

Interests Represented

Does not represent commercial interests

Member Of

https://ikcc.org/about-ikcc/our-partnerships/

Organisation Members

https://ikcc.org/about-ikcc/our-affiliates/partner-organisations/

Commissioner Meetings

No recorded meetings with EU commissioners.