Inspire2Live
Budget
€125,000
EP Access
0
accredited persons
Staff
2
0.6 FTE
EU Grants
None
Mission & Goals
Getting cancer under control and inspiring people to lead happy and healthy lives in harmony with cancer! In our mission, we are the patient’s voice in cancer, because there is too little patient’s perspective present in decisions on cancer research, treatments and regulations. And they need our help now. Everywhere, and not only the ones in the future. Inspire2Live is a patient advocacy organization. The purpose of Inspire2Live is get cancer under control. We believe that this is feasible when patients, physicians and scientists work together to share knowledge, data and inspiration together.
EU Legislative Interests
- Tobacco file - Development, patents, market access and reimbursement of new medicines and diagnostics - Personalised Medicine - HORIZON and IMI project funding - broad use of whole genome sequencing in diagnostics - early detection of cancer; we consider this to be a “Magic Bullet” for improving the result of treatment and the reduction of costs Remark: we experience a disappointingly low level of interest and energy from the part of the EU institutions toward early detection of cancer
Communication Activities
1. Consultancy European Committee on outlines future HORIZON funding Inspire2Live is taking part in consultancy rounds of the European Committee on the future of HORIZON. Our view on Horizon and IMI2 partnerships in short: Active PA involvement has to be part from any initial proposal onwards for an application to even be considered for funding: if about us, not without us! Change it into an Open Source Pharma Fund to finance projects that consist of: AI on basis of FAIR ( i.e.in which WGS-data is compared to pharmacogenetics and pharmacogenomics); Wetlabs (do the AI-outcomes for best treatment work? Registration real life data); Licensing (IP, FAIR access; fair pricing). 2. Whole Genome Sequencing We want the best treatment based on Whole Genome Sequencing to become available for everyone. We support an initiative by several MP's in Dutch Parliament to achieve that goal and want to roll out our initiative European wide. 3. IVDR implementation
Interests Represented
Does not represent commercial interests
Member Of
https://inspire2live.org/about-us/the-patients-voice/partners/
Organisation Members
Onze organisatie kent geen ledenstructuur. het is een netwerkorganisatie die wereldwijd verbindingen legt tussen patiënten onderzoekers en behandelaars en farmaceuten op het terrein van de oncologische zorg. https://inspire2live.org/about/our-partners/ Wij werken in een aantal projecten samen met NKI (NKI.NL) Wij hebben een lopende samenwerking Amsterdam Universitair Medisch Centrum (amsterdamumc.org) Wij zijn eigenaar van het bedrijf Saninfo in de oncologie
Commissioner Meetings
No recorded meetings with EU commissioners.