European Liver Patients' Association
Budget
€500 — €0
EP Access
4
accredited persons
Staff
9
7.5 FTE
EU Grants
€243,100
Mission & Goals
ELPA’s aim is to promote the interests of people with liver disease and in particular: to highlight the size of the problem; to promote awareness and prevention; to address the low profile of liver disease as compared to other areas of medicine such as heart disease; to share experience of successful initiatives; to work with professional bodies such as EASL and with the EU to ensure that treatment and care are harmonised across Europe to the highest standards. Our Mandate:ELPA emerged from a desire amongst European liver patient groups to share their experiences of the often very different approaches adopted in different countries. In June 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association. ELPA was formally launched in Paris on April 14th 2005 during the annual conference of the European Association for the Study of the Liver (EASL) and now has 39 members from 29 countries. Our ultimate goal is a world without liver diseases.
EU Legislative Interests
All aspects related to health, cancer, health statistics, research, development for health, cross-border healthcare, access to healthcare, new digital aspects of health, data privacy issues, clinical and pharmaceutical development.
Communication Activities
White paper on patient perspective, high-level events in EP and Commission, good practices, and conferences. Additionally, we are a part of 20 EU Medical research projects Horizon2020 and 1 project from the EITHealth platform and we are part of three additional projects which are now in the approval stage. We are constantly collaborating with the» Friends of Liver » MEP group and have just started collaborating with the European Kidney Patients' Federation which is collaborating with the MEP group »Kidney Health«. Elpa organized ELPA Screening week 2024 in 2025 in front of EU Parliament, under the patronage of EU Parliament.
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
EMA PCWP https://www.ema.europa.eu/en/partners-networks/patients-consumers/eligible-patients-consumers-organisations EMA PRAC https://www.ema.europa.eu/en/committees/pharmacovigilance-risk-assessment-committee-prac ECDC Advisory Forum https://www.ecdc.europa.eu/en/about-ecdc/who-we-are/governance/advisory-forum/observers ECDC working group on monitoring hepatitis B and C in the EU https://www.ecdc.europa.eu/sites/default/files/documents/hepatitis-B-C-monitoring-responses-hepatitis-B-C-epidemics-EU-EEA-Member-States-2019.pdf WHO EURO Collaborating Committee on TB, HIV, and viral hepatitis https://www.who.int/europe/groups/regional-collaborating-committee-on-accelerated-response-to-tuberculosis-hiv-and-viral-hepatitis-(rcc-thv)/about HERA Civil Society Forum https://health.ec.europa.eu/health-emergency-preparedness-and-response-hera/advisory-forum_en#civil-society-forum
Organisation Members
1. VHC - Vlaams Hepatitis Contactpunt, 2. The Chronic Viral Hepatitis Patients Association, "B18", 3. Leverforeningen, 4. CAHIV, 5. Cyprus Liver Patients Association, 6. Association of Liver Patients' Care - ALPC, 7. The Finnish Kidney and Liver Association, 8. Fédération SOS hépatites, 9. Association for health education, prevention and better treatment – HEPTA, 10. Hepar Centar – Bitola, 11. Hungarian Association of Chronic Hepatitis Patients - VIMOR 12. Hetz - Israeli Association For The Health Of The Liver, 13. Star of Hope Foundation, 14. SOS Hépatites Portugal, 15. APAH-RO, 16. Liver patients association HRONOS, 17. HEP HELP KLUB, 18. Sanca pre pecen, 19. Slovenian Association of patients suffering from hepatitis SLOVENIA HEP, 20. Catalan Association of Hepatitis Patients - ASSCAT, 21. National Federation of Liver Patients and Transplanted-FNETH, 22. Riksföreningen Hepatit C - RHC, 23. HEPYAŞAM - Living with Hepatitis Association 24. British Liver Trust, 25. Liver4Life, 26. proLAR Nett, 27. United against Hepatitis, 28. Humanitarian action, 29. HepCPositive, 30. Hepatitis C Cured Patient Association, 31. Hepatitis C Partnership. 32. Spanish Patient Organization Lysosomal Acid Lipase Deficiency (AELALD) 33. Fecamm, 34. Sklon, 35. 4Life, 36. Anti hepatitis C association, 37. A.I.R.C.S. ODV, 38. Transhepate, 39. Pacientet me hepatite
Additional Information
EU grants were received because we are Consortium Partners in 20 EU Projects.
Commissioner Meetings
No recorded meetings with EU commissioners.