Skip to content
← Lobby Directory
EH
NGOEHA VZW

European Huntington Association VZW

Moerbeke Waas, BELGIUMPatient organisationReg: 681596893658-08Since 24/09/2024

Budget

€345,120

EP Access

0

accredited persons

Staff

1

0.25 FTE

EU Grants

€20,000

Mission & Goals

EHA VZW is a federation of Huntington Disease associations in Europe. We have 44 member associations from 33 European countries. Our main objectives are: To be a voice for Huntington patients and their families across Europe. To raise awareness of the prevalence and impact of Huntington Disease's To ensure policy makers, decision makers and key opinion leaders in Europe recognize the increasing burden of Huntington Disease's and allocate resources accordingly to prevention, treatment, services and supports. To communicate and collaborate with our members to achieve positive change and to ensure that our actions provide added value to their own concerns and activities. To create opportunities for more meaningful involvement and engagement of advocates to be a voice for the needs. To form strong partnerships with relevant stakeholders to help us reach our strategic objectives.

EU Legislative Interests

The Health Data Space The European Health Union - acting together for peoples health The European Partnership on Brain Health The HTA stakeholder forum

Interests Represented

Does not represent commercial interests

Member Of

European Federation of Neurological Associations (EFNA) www.efna.net Eurordis, www.eurordis.org

Organisation Members

We have 44 member associations from 33 countries. https://eurohuntington.org/huntingtons-disease-associations/

Commissioner Meetings

No recorded meetings with EU commissioners.