Recent meetings
No recorded meetings with EU commissioners.
Mission & Goals
EHA VZW is a federation of Huntington Disease associations in Europe. We have 44 member associations from 33 European countries. Our main objectives are: To be a voice for Huntington patients and their families across Europe. To raise awareness of the prevalence and impact of Huntington Disease's To ensure policy makers, decision makers and key opinion leaders in Europe recognize the increasing burden of Huntington Disease's and allocate resources accordingly to prevention, treatment, services and supports. To communicate and collaborate with our members to achieve positive change and to ensure that our actions provide added value to their own concerns and activities. To create opportunities for more meaningful involvement and engagement of advocates to be a voice for the needs. To form strong partnerships with relevant stakeholders to help us reach our strategic objectives.
EU Legislative Interests
The Health Data Space The European Health Union - acting together for peoples health The European Partnership on Brain Health The HTA stakeholder forum
Interests Represented
Does not represent commercial interests
Member Of
European Federation of Neurological Associations (EFNA) www.efna.net Eurordis, www.eurordis.org
Organisation Members
We have 44 member associations from 33 countries. https://eurohuntington.org/huntingtons-disease-associations/