European Federation of Neurological Associations
Budget
€432,476
EP Access
0
accredited persons
Staff
4
2.6 FTE
EU Grants
€42,666
Mission & Goals
The European Federation of Neurological Associations [EFNA] is an umbrella group representing pan-European neurology patient groups. Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an Association. We strive to add capacity to our members – allowing them to be the most effective advocates possible in their own disease specific areas. EFNA embraces the concept of Partnership for Progress – working at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.
EU Legislative Interests
EFNA coordinates an MEP Interest Group on Brain Health and Neurological Conditions and so we follow closely EU initiatives, policies and legislative files in the healthcare and research arenas which may impact on those affected by neurological disorders. EFNA also co-founded the Global OneNeurology Initiative which is working with WHO to develop a 10 year intersectoral global action plan on epilepsy and other neurological disorders, which we hope will influence the EU Institutions to similarly prioritize neurology. EFNA accredited with Non- State Actor Status with WHO- Europe
Communication Activities
EFNA also runs training initiatives for neurology advocates. This includes a focus on implementation of the 10-year intersectoral global action plan on epilepsy and other neurological conditions. This includes access to diagnosis, treatment and care, the establishment of neurological health plans, awarenss campaigns, promotion of brain health and prevention of neurological conditions. This is supported by patient involvement in specific consultations around associated policies such as revisions to the JCA and HTA processes.
Interests Represented
Does not represent commercial interests
Member Of
European Brain Council European Patients Forum Non-Communicable Disease Alliance WHO-Europe European Academy of Neurologists TRANSFORM Alliance
Organisation Members
Euro-Ataxia(0), Dystonia Europe(0), EPODIN(0), European Alliance of Neuromuscular Disorders Association(0), European Alliance for Restless Legs Syndrome(0), European Headache Alliance(0), European Multiple Sclerosis Platform(0), European Polio Union(0), European Sexual Health Alliance(0), EUMGA(0), European Huntington's Disease Association(0), IBE(0), International Brain Tumour Alliance(0), Pain Alliance Europe(0), Retina International(0), Stroke Alliance for Europe(0), ADHD Europe, European Parkinson's Disease Association European ME Alliance Neurological Alliance Ireland Neurological Alliance England
Commissioner Meetings
No recorded meetings with EU commissioners.