CITTADINANZATTIVA APS

EU Legislative Interests

Cittadinanzattiva, through its EU branch “Active Citizenship Network”, advocates to promote and strengthen citizen activism and participation in policy processes and to improve the protection of citizens' and patients' rights. In terms of EU policy priorities for 2025, Cittadinanzattiva – through its EU branch Active Citizenship Network - will mainly focus on: 1. Health promotion & disease prevention, starting from the EU Vaccines Strategy; addressing vaccine hesitancy across the EU 2. Vaccine preventable respiratory diseases and respiratory care; COVID19 3. Adult rare diseases and ensuring integrated, coordinated care for all rare disease patients 4. The EHDS, health data sharing and the implications of returning health data to clinical trials patients 5. Antimicrobial Resistance and the EU pharmaceutical legislation 6. Health systems, healthcare workforce crisis and medical desertification 7. Supporting the implementation of the New Consumer Agenda (with a focus on sustainability and energy issues) to empower European consumers to play an active role in the green and digital transition.

Communication Activities

Recent publications on national and EU magazines and peer review international journals include: - Exploring the benefits of health data sharing for patients, healthcare systems and medical research at the EU level – 05/25 - In Brussels, the European challenge for the rights of people with an ostomy – 03/25 - EEKE: How the BioReCer project builds consumer trust in bio-based products – 03/25 - Call to Action to the European Commission to Urgently Address the Health Workforce Crisis and the Upskilling of Healthcare Professionals – 12/24 - The importance of immunisation in global health – 07/24 - Unlocking energy efficiency: IEA’s Emma Mooney shares insights from the NUDGE Project – 06/24 All publications, statements and interviews are published on our website at: https://www.activecitizenship.net/clippings-interviews-web-press-articles.html Some relevant events: Events we organized at the European Parliament: 15.05.25 - 19th European Patients' Rights Day " Exploring the benefits of health data sharing for patients, healthcare systems, and medical research at the EU level" 26.03.25 - " Living with an ostomy: from invisible struggles to visible change" 20.03.24 - 18th European Patients' Rights Day “Combining the protection of patients' rights with skills shortage, medical desertification and job strain. The key role of HCPs for a healthier Europe.” Other in-person events: 21-22.05.25 - “From pioneers to progress, exploring innovative organic farming practices” 14.04.25 - “Civil society participation in European health policy” 16.10.24 - “EU Migraine Action Plan Workshop” 15.10.24 – “Vaccination Informal Platform (V.I.P.) for Life-Course Immunization” 14.10.24 – “Empowering & mobilizing PAGs on COVID-19 (and long COVID), Prevention, immunization & treatments” 26.06.24 – “EU workshop: Towards country-observatories for vaccination promotion: the role of civic and patient organisations” 25.06.24 - “#VaccinAction2024 First Training Event” Webinars: 28.05.25 – “EU Working Group on Respiratory Care kick-off meeting” 04.07.24 – “Strengthening the European ecosystem for equitable patient access to Advanced Therapy Medicinal Products (ATMPs)” 28.04.25 - “online EU policy lab session with citizens and patients on the challenges for vaccine promotion” A full list of events is available here: https://www.activecitizenship.net/events.html Information about the EU projects we work on can be found here: https://www.activecitizenship.net/projects.html Our European campaigns are available here: https://www.activecitizenship.net/campaigns.html

Interests Represented

Does not represent commercial interests

Member Of

• AMR Patient Alliance Advisory Group • European Association for Educational and Preventive Health in Epigenetics • European Movement (Italian branch) • European Consumer Union • Health First Europe • EU-Russia Civil Society Forum, a network of thematically diverse non-governmental organisations fromRussia and the European Union, established as a bottom-up, non-partisan civic initiative. https://eu-russia-csf.org/ • All.Can international • the AMR patient Group • AMR Stakeholder Network • EU Health Coalition • Steering Group on Influenza Vaccination • All Policies for a Healthy Europe (AP4HE) • Fight the Fakes • Adult Immunization Board • AMR Multi-Stakeholder Partnership Platform • PAE (Pain Alliance Europe) • European Public Health Alliance (EPHA) • Pharmaceutical Group of the European Union (PGEU) • European Specialist Nurses Organisations (ESNO) • European Federation of Nurses (EFN)

Organisation Members

- IAPO (the International Alliance of Patients Organizations) - World Federation of Public Health Associations (WFPHA)