Charitable Foundation Children with Spinal Muscular Atrophy

Mission & Goals

The Children with Spinal Muscular Atrophy (CSMA) is a voluntary, non-profit foundation in Ukraine whose mission is to provide support and information for anyone affected by or involved with Spinal Muscular Atrophy (SMA). SMA is a motor neuron disease characterized by the progressive degeneration of nerve cells in the spinal cord and brainstem, leading to muscle weakness, muscle atrophy, and respiratory complications. TOP 3 The primary goals of Foundation are: Protection of the rights of SMA patients and members of their families; Keeping and supporting National Registry of SMA patients; Assistance in building of experts' Involvement and support of both national and international collaboration.