Asociación Española de laboratorios Huérfanos y Ultrahuérfanos
Budget
€10 — €0
EP Access
0
accredited persons
Staff
2
0.35 FTE
EU Grants
None
Mission & Goals
Aelmhu is a non-profit association which joins pharmaceutical and biotechnological companies that share the common goal of discovering, researching, developing and commercializing innovative therapies to improve the lives of patients who suffer from rare diseases. Mission:Contributing to improve the situation of people affected by rare diseases, promoting knowledge of these pathologies and the recognition of the therapeutic and social value of orphan drugs.
EU Legislative Interests
We are interested in participating in the update of the Orphan and Pediatric Drug Regulations.
Communication Activities
Annual and quarterly report on access to orphan drugs in Spain
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
www.aelmhu.es
Organisation Members
https://aelmhu.es/index.php/quienes-somos/laboratorios
Commissioner Meetings
No recorded meetings with EU commissioners.