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AE
Trade & Business

Asociación Española de laboratorios Huérfanos y Ultrahuérfanos

🇪🇺 SPAINRegistered 12/02 staff
Disclosed budget
€10,000 — €24,999
Meetings 12mo
0
Policy files
0
Accredited passes
0

Recent meetings

No recorded meetings with EU commissioners.

Mission & Goals

Aelmhu is a non-profit association which joins pharmaceutical and biotechnological companies that share the common goal of discovering, researching, developing and commercializing innovative therapies to improve the lives of patients who suffer from rare diseases. Mission:Contributing to improve the situation of people affected by rare diseases, promoting knowledge of these pathologies and the recognition of the therapeutic and social value of orphan drugs.

EU Legislative Interests

We are interested in participating in the update of the Orphan and Pediatric Drug Regulations.

Communication Activities

Annual and quarterly report on access to orphan drugs in Spain

Interests Represented

Promotes their own interests or the collective interests of their members

Member Of

www.aelmhu.es

Organisation Members

https://aelmhu.es/index.php/quienes-somos/laboratorios