← Lobby register
Disclosed budget
€10,000
Meetings 12mo
0
Policy files
0
Accredited passes
0
Recent meetings
| Date | Commissioner / Cabinet | Topic | File |
|---|---|---|---|
| 07 Feb 2023 | Anouk Faber Cabinet member | La stratégie européenne en matière de soins, l'égalité en matière d'emploi et l'intégration des personnes atteintes d'une maladie rare | — |
| 07 Feb 2023 | Anouk Faber Cabinet member | La stratégie européenne en matière de soins, l'égalité en matière d'emploi et l'intégration des personnes atteintes d'une maladie rare | SRC |
Mission & Goals
Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.
EU Legislative Interests
Any policies and legislative proposals related to rare diseases and public health.
Communication Activities
Communications, open letters, and conferences related to rare diseases.
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
EURORDIS
Organisation Members
EDS Letzebuerg- https://edsletzebuerg.lu/2/ ALAEC- https://www.alaec.lu/ ALH-https://www.alh.lu/ CASK luxembourg Den-i Syndrome de Marfan Luxemburg https://den-i.lu/ Individual members, people living with a rare disease in Luxembourg