ALAN asbl-Maladies Rares Luxembourg
Budget
€10 — €0
EP Access
0
accredited persons
Staff
1
0.1 FTE
EU Grants
None
Mission & Goals
Fostering an environment for people living with a rare disease to realize their full potential through recognition, equal opportunities and improved quality of life.
EU Legislative Interests
Any policies and legislative proposals related to rare diseases and public health.
Communication Activities
Communications, open letters, and conferences related to rare diseases.
Interests Represented
Promotes their own interests or the collective interests of their members
Member Of
EURORDIS
Organisation Members
EDS Letzebuerg- https://edsletzebuerg.lu/2/ ALAEC- https://www.alaec.lu/ ALH-https://www.alh.lu/ CASK luxembourg Den-i Syndrome de Marfan Luxemburg https://den-i.lu/ Individual members, people living with a rare disease in Luxembourg
Commissioner Meetings
No recorded meetings with EU commissioners.