Advanced Breast Cancer Global Alliance

EU Legislative Interests

Being one of the major stakeholders on advanced breast cancer we are interested in providing our support on the Europe's Beating Cancer Plan. In this frame we ha a preliminary meeting with the Commissioner for Health and Food Safety on 5 February 2020 to offer our support. We are attending webinars and meeting on the Europe's Beating Cancer Plan and are are registered on the EU Health Policy Platform Agora Network (including the thematic group “Quality of Life” of the Stakeholder Contact Group on the Europe's Beating Cancer Plan). To reinforce the spirit of collaboration and support to the initiative the EU Commissioner for Health and Food Safety gave an opening lecture at our Advanced Breast Cancer Sixth International Consensus Conference in November 2021 addressing an inspiting lecture on "Europe’s Beating Cancer Plan and advanced cancer patients". She endorsed the Advanced Breast Cancer Seventh International Consensus Conference (November 2023, hybrid event Lisbon and online) and she sent a video message broadcasted in the opening ceremony. One of the Special Adviser to the European Commissioner for Health and Food Safety on cancer policy has been an Honorary Chair of our event for many years. The eighth edition of the event, Advanced Breast Cancer Eighth International Consensus Conference took place in last November. At the conference we launched the Advanced Breast Cancer Global Decade Report (2015-2025). This report provides an assessment of progress made over the past 10 years, analyzing the advanced breast cancer (ABC) landscape from 2015 to 2025. It highlights areas of improvement, persistent challenges, and emerging needs within the global ABC community.The insights from this new Global Decade Report have directly informed the development and renewal of the ABC Global Charter (2025-2035). This updated Charter outlines a new set of "Goals for Change" for the next decade, designed to further drive progress, address critical gaps, and ensure that no one is left behind. We are members of an initiative called Transforming Breast Cancer Together. launched in 2017, that brings together policymakers, patient organisations, professional organisations and companies committed to raising awareness of the daily realities of living with breast cancer. In the frame of this collaboration we recently had a meeting with the Cabinet of the Commissioner and DG Sante to evaluate how to support the implementation of the plan.

Communication Activities

- I have Cancer but I want to work. Working rights for Cancer patients, event organized on 7 November 2018 - Meeting with Commissioner Stella Kyriakides, 5 February 2020 - Advanced Breast Cancer Sixth International Consensus Conference, 4-6 November 2021 (virtual) - Paper on "Gaps in Care and Support for Patients With Advanced Breast Cancer: A Report From the Advanced Breast Cancer Global Alliance" published on JCO on Sept 2021 - Awareness campaign launched in November 2021 titled "The truth about working with advanced breast cancer" (https://www.workingwithabc.com/) - Paper on "Addressing disparities and challenges in underserved patient populations with metastatic breast cancer in Europe " published in The Breast in Dec 2020 - Development of a QoL tool specific for ABC, in partnership with EORTC Quality of Life and Breast Cancer Groups (in progress) - Development of a Quality indicators for ABC/mBC, in partnership with ESO and EUSOMA https://www.sciencedirect.com/science/article/abs/pii/S0959804923001648 - Uncovering international disparities in metastatic breast cancer outcomes, in partnership with IARC (in progress) - Project to calculate the finantial impact of more flexible labour laws for cancer patients, in collaboration with Lisbon Medical University (report to be published soon). We are also considering to implement a similar initiative in Italy and Cyprus - Contributors to The Lancet Commission on Breast Cancer published on April 2024 https://www.abcglobalalliance.org/resources#lancet-commission - Contributors to the WHO Global Breast Cancer Initiative and as such contributors in the report that will be published in 2023 https://www.who.int/publications/i/item/9789240065987 - An awareness campaign on access to care realeased in November 2023 https://www.abcglobalalliance.org/what-we-do#campaigns - Advanced Breast Cancer Seventh International Consensus Conference, November 2023 including definition of guidelines for treatment of metastatic disease (https://www.thebreastonline.com/article/S0960-9776(24)00087-0/fulltext) - A decade after the initial assessment, we are proud to release the ABC Global Decade Report (2015-2025). This report provides an assessment of progress made over the past 10 years, analyzing the advanced breast cancer (ABC) landscape from 2015 to 2025. It highlights areas of improvement, persistent challenges, and emerging needs within the global ABC community. The insights from this new Global Decade Report have directly informed the development and renewal of the ABC Global Charter (2025-2035). This updated Charter outlines a new set of "Goals for Change" for the next decade, designed to further drive progress, address critical gaps, and ensure that no one is left behind. https://www.abcglobalalliance.org/abc-global-charter-report

Interests Represented

Does not represent commercial interests

Member Of

Union for International Cancer Control (UICC) https://www.uicc.org/ Global Cancer Coalitions Network (GCCN) https://www.globalccn.org/ African Organisation for Research and Training in Cancer (AORTIC) https://aortic-africa.org/ ECO Community 365 https://www.europeancancer.org/community-365 Transforming Breast Cancer Together (TBCT) https://www.tbct.eu/

Organisation Members

List of members available at https://www.abcglobalalliance.org/who-we-are#members